What are Pakistani womenʹs experiences of antenatal carrier screening for beta-thalassaemia in the UK? Why it is difficult to answer this question?

In the UK antenatal screening of Pakastani women for thalassaemia carrier status is commonplace. This paper describes our attempts to investigate women’s experiences of such screening and the reasons why this proved difficult to do. These included a pregnancy per year and communications failure between different health professionals involved in antenatal haemoglobinopathy screening. These issues have implications for the way in which such screening is conducted and these are discussed.