Help-seeking for parents of individuals experiencing a first episode of schizophrenia

The purpose of this triangulated study was to understand parentsʹ experience of help-seeking in response to their childʹs first episode of schizophrenia. Twenty participants completed questionnaires related to stigma, parental caregiver burden, uncertainty in illness and help-seeking. Findings indicated: (1) as stigmatized attitudes towards mental illness and feelings of ambiguity increased, so did burden; (2) as parental education increased, uncertainty regarding their childʹs illness decreased; (3) as the number of symptoms causing distress increased so did burden and lack of clarity regarding their childʹs illness. A significant amount of time passed before parents were able to access help. No relationships were found between indicators of parental help-seeking and the study variables. A subset of five participants described their help-seeking experience. Three overarching themes emerged: (1) Evolving change: What does it mean? (2) Continuous help-seeking, and (3) The help-seeking experience: Impact on parents.