Title of article :
Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (NSCIR-IR): A Pilot Study
Author/Authors :
Naghdi, Khatereh Tehran University of Medical Sciences, Tehran , Azadmanjir, Zahra Department of Health Information Management - School of Allied Medical Sciences - Tehran University of Medical Sciences, Tehran , Saadat, Soheil Tehran University of Medical Sciences, Tehran , Abedi, Aidin Tehran University of Medical Sciences, Tehran , Koohi Habibi, Sahar Department of Health Information Management - School of Allied Medical Sciences - Tehran University of Medical Sciences, Tehran , Derakhshan, Pegah Tehran University of Medical Sciences, Tehran , Safdarian, Mahdi Tehran University of Medical Sciences, Tehran , Abdollah Zadegan, Shayan Tehran University of Medical Sciences, Tehran , Amirjamshidi, Abbas Department of Neurosurgery - Sina Hospital - Tehran University of Medical Sciences, Tehran , Sharif-Alhoseini, Mahdi Tehran University of Medical Sciences, Tehran , Arab Kheradmand, Jalil , Mohammadzadeh, Mahdi Kashan University of Medical Sciences, Kashan , Zendehdel, Kazem Tehran University of Medical Sciences, Tehran , Khazaeipour, Zahra Imam Khomeini Hospital - Tehran University of Medical Sciences, Tehran , Ramak Hashemi, Mahmood Department of Neurosurgery - Firoozgar General Hospital - Iran University of Medical Science, Tehran , Saberi, Hooshang Imam Khomeini Hospital - Tehran University of Medical Sciences, Tehran , Karimi Yarandi, Kourosh Department of Neurosurgery - Sina Hospital - Tehran University of Medical Sciences, Tehran , Ketabchi, Ebrahim Department of Neurosurgery - Sina Hospital - Tehran University of Medical Sciences, Tehran , Yousefzadeh-Chabok, Shahrokh Guilan University of Medical Sciences, Rasht , Heidari, Hamid Guilan University of Medical Sciences, Rasht , Sotodeh, Arezo Poursina Hospital - Guilan University of Medical Sciences, Rasht , Pestei, Khalil Department of Anesthesiology - Tehran University of Medical Sciences, Tehran , Ghodsi, Zahra Tehran University of Medical Sciences, Tehran , Sadeghian, Farideh Tehran University of Medical Sciences, Tehran , Noonan, Vanessa University of British Columbia - Vancouver - British Columbia, Canada , Benzel, Edward C Department of Neurosurgery - Cleveland - Ohio - United States of America , Oreilly, Gerard Department of Epidemiology and Preventive Medicine - School of Public Health and Preventive Medicine - Monash University - Melbourne, Australia , Chapman, Jens Swedish Neuroscience Institute - Swedish Medical Center - Seattle - Washington, USA , Merete Hagen, Ellen Department of Clinical Medicine Aarhus University - Aarhus, Denmark , Fehlings, Michael G Toronto Western Hospital - University Health Network - Toronto - Ontario, Canada , Vaccaro, Alexander R Department of Orthopaedic Surgery - the Rothman Institute - Thomas Jefferson University - Philadelphia, USA , Faghih Jooybari, Morteza Department of Neurosurgery - Shariati Hospital - Tehran University of Medical Sciences, Tehran , Zarei, Mohammad Reza Tehran University of Medical Sciences, Tehran , Zafarghandi, Mohammad Reza Tehran University of Medical Sciences, Tehran , Salamati, Payman Tehran University of Medical Sciences, Tehran , Nezareh, Saeed , Khormali, Moein Tehran University of Medical Sciences, Tehran , Sadeghi-Naini, Mohsen Tehran University of Medical Sciences, Tehran , Jazayeri, Behzad Tehran University of Medical Sciences, Tehran , Aarabi, Bizhan Department of Neurosurgery - University of Maryland School of Medicine - Baltimore - Maryland, USA , Rahimi-Movaghar, Vafa Tehran University of Medical Sciences, Tehran
Pages :
9
From page :
494
To page :
502
Abstract :
BACKGROUND: Spinal cord injury (SCI) is one of the most disabling consequences of trauma with unparalleled economic, social, and personal burden. Any attempt aimed at improving quality of care should be based on comprehensive and reliable data. This pilot investigation studied the feasibility of implementing the National Spinal Cord and Column Injury Registry of Iran (NSCIR-IR) and scrutinized the quality of the registered data. METHODS: From October 2015 to May 2016, over an 8-month period, 65 eligible patients who were admitted to hospitals in three academic centers in mainland Iran were included in this pilot study. Certified registered nurses and neurosurgeons were in charge of data collection, quality verification, and registration. RESULTS: Sixty-five patients with vertebral column fracture dislocations were registered in the study, of whom 14 (21.5%) patients had evidence of SCI. Mechanisms of injury included mechanical falls in 30 patients (46.2%) and motor vehicle accidents in 29 (44.6%). The case identification rate i.e. clinical and radiographic confirmation of spine and SCI, ranged from 10.0% to 88.9% in different registry centers. The completion rate of all data items was 100%, except for five data elements in patients who could not provide clinical information because of their medical status. Consistency i.e. identification of the same elements by all the registrars, was 100% and accuracy of identification of the same pathology ranged from 66.6% to 100%. CONCLUSIONS: Our pilot study showed both the feasibility and acceptable data quality of the NSCIR-IR. However, effective and successful implementation of NSCIR-IR data use requires some modifications such as presence of a dedicated registrar in each center, verification of data by a neurosurgeon, and continuous assessment of patients’ neurological status and complications.
Keywords :
Registry , trauma , Spinal Cord Injury
Journal title :
Astroparticle Physics
Serial Year :
2017
Record number :
2445625
Link To Document :
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