Author/Authors :
Abolhassani, Hassan Research Center for Immunodeficiencies - Pediatrics Center of Excellence - Children's Medical Center - Tehran University of Medical Sciences, Tehran , Aghamohammadi, Asghar Research Center for Immunodeficiencies - Pediatrics Center of Excellence - Children's Medical Center - Tehran University of Medical Sciences, Tehran , Pourjabbar, Sarvenaz Research Center for Immunodeficiencies - Pediatrics Center of Excellence - Children's Medical Center - Tehran University of Medical Sciences, Tehran , Salehi Sadaghiani, Mohammad Research Center for Immunodeficiencies - Pediatrics Center of Excellence - Children's Medical Center - Tehran University of Medical Sciences, Tehran , Nikayin, Sina Research Center for Immunodeficiencies - Pediatrics Center of Excellence - Children's Medical Center - Tehran University of Medical Sciences, Tehran , Rabiee, Anahita Research Center for Immunodeficiencies - Pediatrics Center of Excellence - Children's Medical Center - Tehran University of Medical Sciences, Tehran , Imanzadeh, Amir Research Center for Immunodeficiencies - Pediatrics Center of Excellence - Children's Medical Center - Tehran University of Medical Sciences, Tehran , Mahmoodi Gharaei, Javad Department of Psychiatric - Rozbeh Hospital - Tehran University of Medical Sciences, Tehran , Arbabi, Mohammad Department of Psychiatric - Rozbeh Hospital - Tehran University of Medical Sciences, Tehran , Rezaei, Nima Research Center for Immunodeficiencies - Pediatrics Center of Excellence - Children's Medical Center - Tehran University of Medical Sciences, Tehran
Abstract :
Primary immunodeficiency diseases (PID) consist of a group of long-term illnesses which
had permanent psychiatric effects on the patients and their parents. This study was designed
to find out the most important origins and aspects of stressor in parents of PID patients.To
assess the impact of psychiatric aspects in parents of PID patients, a valid and reliable
questionnaire was compiled based on patients' complaints and consulting professionals in
PID and psychology.
Fathers of 26 PID patients (17 male and 9 female) were enrolled in this study. According
to the result of this study, anxiety for long duration of disease of child (mean score= 4.42),
anxiety for incurable diseases of child (mean score=4.23) and anxiety for side effects and
complication of treatments on child (mean score=4.08) were the most important stressors of
parents.
The comparison between specific PID groups showed that there were significant
differences between total score of groups (XLA= 92.8±31.2, CVID=78.7±19.5 and other
types of PID= 90.7±22.5, p-value =0.37).
Survey for finding fundamental stressors and continuation of psychological counseling
are necessary to achieve successful management of PID patients and their parents.
