Author/Authors :
Botti, Stefano Arcispedale Santa Maria Nuova IRCCS, Reggio Emilia, Italy , Gargiulo, Gianpaolo Federico II University Hospital of Naples, Italy , Bombaci, Felice AIL Patients group CML, Rome, Italy , Artioli, Giovanna Arcispedale Santa Maria Nuova IRCCS, Reggio Emilia, Italy , Cosentino, Chiara Department of Medicine and Surgery - University of Parma, Italy , Concetta Pignatelli, Adriana Regina Elena National Cancer Institute of Rome, Italy , Torino, Daniela University Hospital Careggi of Firenze, Italy , Marcella Lionetti, Maria University Hospital Città della Salute e della Scienza of Turin, Italy , Samarani, Emanuela Spedali Civili of Brescia Hospital, Italy , Cappucciati, Lorella Guglielmo da Saliceto Hospital of Piacenza, Italy , Bordiga, Paola Spedali Civili of Brescia Hospital, Italy , Diodati, Antonella Santo Spirito Hospital of Pescara, Italy , Caffarri, Cristiana Arcispedale Santa Maria Nuova IRCCS, Reggio Emilia, Italy , Rosini, Irene Italian Nurses Federation IPASVI, Rome, Italy , Pane, Fabrizio Federico II University Hospital of Naples - Italian Society of Hematology, Italy
Abstract :
Background and aims:The use of Tirosine Kinase Ihnibitors (TKIs) for the treatment of Chronic My-eloid Leukemia (CML) has definitely represented a turning point in the treatment of the onco-hematological diseases. Over the years, the interest of physicians, nurses, patients and caregivers has increasingly focused on the aspects of the humanization of care, the management of side effects and on the full and constant therapeutic adherence.The aim of the project was to define patient-oriented care processes, based on a proactive approach that can fully respond to the new health needs of CML patients.Methods:A nursing expert Working Group (WG) was established. WG reviewed literature about CML patients assistance and then it was conducted a survey on organizational models for the treatment of CML patients, adopted by Italian haematologic and transplant centers. Finally, the main issues regarding CML patients care were identified and discussed on a multiprofessional basis.Results:Euriclea Project for care of CML patients with the description of a new and expanded nurse role was defined. The Nurse Case Manager or Nursing Clinical Experts were identified as key people for the management of the side effects of treatment, the promotion of the therapeutic adherence and the evaluation of efficacy and effectiveness of the process through the identification of specific indicators for structure, process and outcome. Discussion:The focal areas of the care process were identified so as to define a different approach to the CML patient, through a holistic view of care and the multidisciplinary interventions.
Keywords :
clinical pathways , chronic myeloid leukaemia , tirosine chinase inhibitors , nursing , proactive care , adherence , patient empowerment , side effects , adverse events
