Author/Authors :
hazlan, siti nur haidar hospital universiti sains malaysia, Kubang Kerian, MALAYSIA , mazlan, nur aishah hospital universiti sains malaysia, Kubang Kerian, MALAYSIA , ahmad, farah syazana kabir hospital universiti sains malaysia, Kubang Kerian, MALAYSIA , taib, fahisham hospital universiti sains malaysia, Kubang Kerian, MALAYSIA
Abstract :
Spinal muscular atrophy (SMA) is one of the most recognised life-limiting conditions in paediatric palliative care. Despite the advancement of medical technology, many children with severe SMA die early. Often, managing physicians are trapped in dilemma whether to go all-out treating these patients or to be more conservative using palliative approach, knowing our limited resources and the futility of the treatment outcome. This article discusses the challenging aspect of managing these patients by using Islamic medical ethics to resolve this dilemma.
Keywords :
Spinal muscular atrophy , Islamic ethics , Palliative care , End of life