Understanding the Experiences of Parents in Raising Children With Autism Spectrum Disorder: A Qualitative Study

Objectives: Autism spectrum disorder (ASD) is a neurodevelopmental disorder that includes abnormal communication, repetitive and limiting interests, and social dysfunction. This study aimed to identify the experiences of parents in raising children with ADS in Iran. Methods: A total of 18 parents of children with ASD were selected by purposive and convenient sampling method to participate in the study. To collect data, in-depth semi-structured interviews were conducted. The text of the interviews was analyzed using interpretative phenomenological analysis. Results: Two main themes of positive and negative experiences were identified in the analysis. In the positive experiences two sub-themes of “continuing education and acquiring spirituality” and “increasing life skills” and in the negative experiences five sub-themes of “reduction of communication and lack of social support,” “improper treatment with the child with ASD,” “feeling ashamed,” “lack of adaptability,” and “being judged by others” were identified.  Discussion: These findings can provide a deep understanding of the experiences of caring parents of children with ASD in Iran. In addition, the results of this study can provide valuable information to researchers, clinicians, etc. to indicate the specific needs of families who care for children with ASD.