Evaluation of the role of the Parkinson’s disease nurse specialist

A one year follow up study of 108 randomised patients with Parkinson’s disease at three centres was performed to investigate differences between care provided by the hospital based Parkinson’s disease nurse specialist (PDNS) compared with the Consultant Neurologist (control). Only two (out of 22) differences were found where physical functioning and general health improved more in the control group. Provision of PDNS’ for patients with Parkinson’s disease cannot therefore be recommended solely on cost-effectiveness grounds because of similar outcomes but increased costs associated with the PDNS providing additional care. However medical and nursing specialists valued their complimentary expertise, and patient and carers responses to consultations also reflect that PDNS’s have particular contributions. Aspects of care most valued by patients and carers and consultation interactions are discussed.