Title :
A critique of the U.S. Genetic Privacy Act
Author_Institution :
Dept. of Philos., San Francisco Univ., CA, USA
Abstract :
The paper critiques and revises the US Genetic Privacy Act that proposes Federal legislation to “protect the genetic privacy of individuals”. The Act safeguards the privacy of an individual from whom genetic information is gathered (the sample source), but fails to protect the privacy of others genetically related to the sample source. E.g., the Act does not prevent a sample source from giving a DNA sample to some third party such as an insurance company, so that the insurance company could gather genetic information on the source´s sibling. The paper notes this lacuna in the Act and proposes remedies
Keywords :
data privacy; genetics; legislation; medical information systems; DNA sample; Federal legislation; Human Genome Project; US Genetic Privacy Act; genetic databanks; genetic information; insurance company; Bioinformatics; DNA; Genetics; Genomics; Humans; Insurance; Legislation; Privacy; Proposals; Protection;
Conference_Titel :
Technology and Society, 2000. University as a Bridge from Technology to Society. IEEE International Symposium on
Conference_Location :
Rome
Print_ISBN :
0-7803-5803-1
DOI :
10.1109/ISTAS.2000.915649
