An efficient REDCap based data collection platform for the Primary Immune Thrombocytopenia and its analysis over the conventional approaches

Primary Immune Thrombocytopenia (ITP) is a rare chronic disease. The registry of ITP contains all the necessary information for its research and analysis. The registry is thoroughly dependent on its underneath data collection platform. Generally, data collection for the ITP conducted on a routine basis and over a long period of time. However, most of the existing web based data collection approaches compromise the data security, data backup, flexibility and scalability. The REDCap based system can overcome these weaknesses as it has easier migration, validation, extraction and evolution processes. Thus, this paper develops a REDCap based data collection platform for the ITP registry. Then a detail comparative analysis between the two systems has been presented.