بررسي ارتباط بين موانع محيطي با كيفيت زندگي كودكان فلج مغزي 12-8 سال مدرسه رو شهر تهران

Relationship between Environmental Barriers and Quality of Life of School-Aged Children, Aged 8-12, with Cerebral Palsy in Tehran

مقدمه و اهداف به حداكثر رساندن كيفيت زندگي كودكان و نوجوانان داراي ناتواني، هدف اوليه خدمات توانبخشي و از جمله بحث ­هاي مطرح در تحقيقات توانبخشي و سلامت كودك مي ­باشد. با آگاهي از ميزان تاثير عوامل مختلف از جمله موانع محيطي مي­ توان در جهت بهبود كيفيت زندگي اين كودكان اقدام كرد. هدف از مطالعه حاضر، بررسي ارتباط بين موانع محيطي با كيفيت زندگي كودكان فلج مغزي 12-8 سال مدرسه ­رو شهر تهران بود. مواد و روش­ ها مطالعه حاضر از نوع مقطعي و توصيفي-تحليلي بود. جمعيت مورد مطالعه شامل 67 نفر بود كه از بين كودكان مبتلا به فلج مغزي 12-8 سال مدرسه­ رو سطح شهر تهران كه معيار­هاي ورود به مطالعه را داشتند، به صورت نمونه ­گيري در دسترس انتخاب شدند. جهت ارزيابي موانع محيطي از European Child Environment Questionnaire و جهت ارزيابي كيفيت زندگي از پرسش­نامه كيفيت زندگي از Cerebral Palsy Quality Of Life Questionnaire نسخه والدين استفاده گرديد. يافته­ ها يافته ­هاي مطالعه حاضر نشان داد كه بين كيفيت زندگي و موانع محيطي رابطه منفي معنادار وجود دارد (P>0/05) نتيجه ­گيري نتايج مطالعه حاضر نشان داد بين كيفيت زندگي و موانع محيطي رابطه معنادار وجود دارد؛ به اين صورت كه هر اندازه موانع محيطي پيرامون يك كودك فلج مغزي كمتر باشد، از كيفيت زندگي مطلوب­تري برخوردار خواهد بود و برعكس.

Background and Aim: Improving the quality of life in children and adolescents with disabilities is the primary goal of children's rehabilitation services and researchers. Reducing and identifying environmental barriers for children with disabilities are essential to create an inclusive society. The purpose of the present study was to determine the relationship between environmental barriers and quality of life of children with cerebral palsy. Materials and Methods: In the current descriptive/analytical cross-sectional study, 67 children with cerebral palsy were selected via the convenience sampling. Data were collected using demographic questionnaire, European Child Environment Questionnaire (ECEQ), and CP-QOL questionnaire (Primary Caregiver). The data were analyzed using SPSS software running Pearson correlation. Results: The findings showed that there is a significant negative relationship between quality of life and environmental barriers (r = -0.36, p <0.05). Also, a significant negative correlation was found between the quality of life of children with cerebral palsy and physical environment of home, the physical environment of the community, transportation, and social support (p <0.05). However, there was no relationship between the quality of life and the components of the physical environment of the school, social support at home, attitude of family and friends, attitude of teachers and therapists, and attitude of classmates (p <0.05). Conclusion: The results of the present study showed that there is a significant relationship between quality of life and environmental barriers so that as environmental barriers around children with cerebral palsy decrease, the quality of life increases and vice versa.