ﻣﻘﺎﯾﺴﻪ ﮐﯿﻔﯿﺖ زﻧﺪﮔﯽ ﻣﺎدران داراي ﻓﺮزﻧﺪ ﻣﺒﺘﻼ ﺑﻪ ﺑﯿﻤﺎري ﻣﺎدرزادي ﻗﻠﺒﯽ، ﻗﺒﻞ و ﺑﻌﺪ از ﻋﻤﻞ ﺟﺮاﺣﯽ ﻗﻠﺐ اﻃﻔﺎل در ﺑﯿﻤﺎرﺳﺘﺎن وﻟﯽ ﻋﺼﺮ در ﺳﺎل 1396

Comparison of Quality of Life in Mothers of Children with Congenital Heart Diseases before and after Cardiac Surgery in Vali-E Asr Hospital in 2017

ﻣﻘﺪﻣﻪ: ﯾﮑﯽ از ﺷﺎﯾﻊﺗﺮﯾﻦ آﻧﻮﻣﺎﻟﯽﻫﺎي ﻣﺎدرزادي در ﮐﻮدﮐﺎن، ﺑﯿﻤﺎري ﻫﺎي ﻣﺎدرزادي ﻗﻠﺒﯽ ﻣﯽﺑﺎﺷﺪ ﮐﻪ اﺛﺮات ﻧﺎﻣﻄﻠﻮﺑﯽ را ﺑﺮ ﺳﻼﻣﺖ روان، ﻋﻤﻠﮑﺮد ﻓﯿﺰﯾﮑﯽ و اﻗﺘﺼﺎدي ﺧﺎﻧﻮاده دارد. اﯾﻦ ﻣﻄﺎﻟﻌﻪ ﺑﻪ ﻣﻘﺎﯾﺴﻪ ﺑﺮرﺳﯽ ﮐﯿﻔﯿﺖ زﻧﺪﮔﯽ ﻣﺎدران داراي ﻓﺮزﻧﺪ ﻣﺒﺘﻼ ﺑﻪ ﺑﯿﻤﺎري ﻗﻠﺒﯽ ﻣﺎدرزادي ﻗﺒﻞ و ﺑﻌﺪ از ﻋﻤﻞ ﺟﺮاﺣﯽ ﻗﻠﺐ ﻣﯽ ﭘﺮدازد. روش ﺑﺮرﺳﯽ: اﯾﻦ ﻣﻄﺎﻟﻌﻪ از ﻧﻮع ﺗﻮﺻﯿﻔﯽ -ﺗﺤﻠﯿﻠﯽ و ﻣﻘﻄﻌﯽ ﺑﻮده ﮐﻪ ﮐﯿﻔﯿﺖ زﻧﺪﮔﯽ 60 ﻣﺎدر داراي ﮐﻮدك ﻣﺒﺘﻼ ﺑﻪ ﺑﯿﻤﺎري ﺮاﺟﻌﻪ ﮐﻨﻨﺪه ﺑﻪ ﺑﯿﻤﺎرﺳﺘﺎن وﻟﯽ ﻋﺼﺮ ﺑﯿﺮﺟﻨﺪ در ﺳﺎل 1396 را ﻗﺒﻞ و ﺑﻌﺪ از ﻋﻤﻞ ﺟﺮاﺣﯽ ﻗﻠﺐ ﻣﻮرد ﺑﺮرﺳﯽ ﻗﺮار ﻣﯽ دﻫﺪ. ﭘﺲ از ﺗﻮﺟﯿ ﮐﺴﺐ رﺿﺎﯾﺖ ﻧﺎﻣﻪ ﮐﺘﺒﯽ آﮔﺎﻫﺎﻧﻪ از ﻣﺎدران، ﭘﺮﺳﺶ ﻧﺎﻣﻪ ﮐﯿﻔﯿﺖ زﻧﺪﮔﯽ ﺳﺎزﻣﺎن ﺟﻬﺎﻧﯽ ﺑﻬﺪاﺷﺖ ﺑﯿﻦ آن ﻫﺎ )10 روز ﻗﺒﻞ از ﻋﻤﻞ ﺟﺮاﺣﯽ ﺳﻪ ﻣﺎه ﺑﻌﺪ از ﻋﻤﻞ ﺟﺮاﺣﯽ( ﺗﻮزﯾﻊ و ﺗﮑﻤﯿﻞ ﮔﺮدﯾﺪ. ﭘﺲ از ﺟﻤﻊ آوري داده ﻫﺎ و ورود آن ﺑﻪ ﻧﺮم اﻓﺰار 16 SPSS version ﺗﺠﺰﯾ ﺗﺤﻠﯿﻞ داده ﻫﺎ اﻧﺠﺎم ﺷﺪ. ﺳﻄﺢ ﻣﻌﻨﯽ داري ﮐﻠﯿﻪ آزﻣﻮن ﻫﺎ 5 درﺻﺪ در ﻧﻈﺮ ﮔﺮﻓﺘﻪ ﺷﺪ. ﻧﺘﺎﯾﺞ: ﻣﯿﺎﻧﮕﯿﻦ ﻧﻤﺮه ﮐﯿﻔﯿﺖ زﻧﺪﮔﯽ ﻗﺒﻞ و ﺳﻪ ﻣﺎه ﺑﻌﺪ از ﻋﻤﻞ ﺑﻪ ﺗﺮﺗﯿﺐ 40/8±2/7 و 66/5±2/2 ﺑﻮد ﮐﻪ ﺑﻪ ﻃﻮر ﻣﻌﻨﯽ داري ﮐﯿﻔﯿﺖ زﻧﺪﮔﯽ در ﺑﯿﻤﺎران اﻓﺰاﯾﺶ ﯾﺎﻓﺘﻪ ﺑﻮد )0/001

Introduction: Congenital heart diseases (CHD) are the most common congenital anomalies in children that can adversely influence children and families mental health, physical performance, and family economic. The aim of present study was to compare the quality of life (QOL) in mothers with children with CHD before and after cardiac surgery in South Khorasan Province (East of Iran). Methods: In this cross sectional study the QOL of 60 mothers with CHD children admitted in Vali-e Asr Hospital were evaluated before and after cardiac surgery in 2017. They were incorporated upon provision of informed consent. The Mac new Heart Disease Health -related quality of life Questionnaire scale was completed by the mothers 10 days before and three months after the surgery. The data were analyzed in SPSS software (version 16) using relative tests. p<0.05 was considered as significant difference. Results: The results of the present study showed that the mean of QOL score were significantly increased from 40.8±2.7 in initial time to 66.50± 2.2 in 3 months after surgery (p<0.001). Conclusion: Cardiac surgery in children with CHD could improve the overall QOL score and all of its subscales (physical health, emotional health and social health) of their parents.