بررسي نيازهاي آموزشي بيماران مبتلا به MS عضو انجمن MS ايران در سال 1386

The study of training demands of MS patients, members of Iranʹʹs MS Society in 2007

سابقه و هدف: با توجه به عوارض و مشكلات ناشي از بيماري مولتيپل اسكلروزيس (MS) و لزوم آموزش و مداخلات مناسب جهت افزايش كيفيت زندگي بيماران، در مطالعه حاضر نيازهاي آموزشي بيماران مبتلا به MS عضو انجمن MS ايران در سال 1386بررسي شد. روش بررسي: در اين مطالعه توصيفي، 174بيمار مراجعه‌كننده به انجمن MS ايران بطور تصادفي آسان انتخاب و مورد بررسي قرار گرفتند. ابزار گردآوري داده‌ها در اين پژوهش فرم پرسش نامه بود كه در 4 بخش تنظيم گرديد. يافته ها: اكثر بيماران (4/26 درصد) در گروه سني 39-32 سال، (3/71 درصد) زن و‌ (8/59 درصد) متاهل بودند و 7/27 درصد آنها سابقه ابتلا به بيماري كمتر از 3 سال داشتند. 1/39 درصد بيماران احساس نياز به آموزش در حد بالا داشتند، 6/0 درصد نياز به آموزش در حد بالا در مورد ماهيت بيماري داشتند، 94 درصد در مورد مشكلات جنسي نياز به آموزش داشتند، 5/61 درصد در مورد روش‌هاي كنترل اضطراب نياز به آموزش داشتند و 5/61 درصد در مورد مشكلات تهيه دارو نياز به آموزش داشتند. هم چنين بين نياز آموزشي در حيطه جسمي و تحصيلات (027/0=P)، بين نياز آموزشي در حيطه روحي رواني و تحصيلات (003/0=P)، بين نياز آموزشي در حيطه روحي رواني و پذيرش بيماري (035/0=P)، بين نياز آموزشي در حيطه جسمي و دفعات بستري (004/0=P) و بين نياز آموزشي در حيطه روحي رواني و دفعات بستري ارتباط معني‌داري وجود داشت (001/0 > P). نتيجه گيري: اين مطالعه نشان داد كه برخي صفات مشخصه سبب شدت يافتن نياز آموزشي مي‌شود و بيماران در حيطه جسمي نسبت به حيطه روحي- رواني و اجتماعي- اقتصادي نياز آموزشي بيشتري داشتند كه لزوم توجه به اين حيطه مشخص مي‌شود.

Background: This research is a descriptive study about training needs of MS patients who are members of Iranʹs MS Society and aims at presenting a proper training model for these patients in 2007. Materials and methods: In this study 174 patients referred to Iranʹs MS Society were chosen with simple randomized method from patients who fulfilled required criteria. Data were collected through questionnaire containing 4 parts. First part contained 16 questions about personal information, second part was about patients views to their training needs, third part contained 8 questions surveying patients willing to know more about the disease nature, and in the fourth part there were 41 questions about their training demands in relation with physical, psychologic, and socioeconomic categories. Results: The results revealed that the age range of most cases (26.4%) was between 32-39 years, 71.3% were female, 59.8% were married, and 27.7% of patients had a history of less than 3 years of being afflicted with the disease. The results related to the first part of the study showed that 39.1% of cases had high training needs. Findings revealed that as for the second part of the study, 0.6% of cases had high training requirements for knowing about disease nature. In relation to the third part, findings showed that 94% of cases had sexual dysfunctions and needed more training accordingly. The study findings in fourth part implied that 61.5% of cases had training needs about anxiety control methods. Findings in fifth part showed that 61.5% of cases required some training about difficulties facing in procuring medicine. Findings related to sixth part showed that there was significant relation between patients training needs about somatic issues and the education level (p=0.027). Also there was significant relation between training demands in psychologic category and the education level (p=0.003). There was significant relation between training demands in psychologic category and accepting the illness (p=0.035). There was significant relation between patients training needs about somatic issues and frequency of being hospitalized (p=0.004). There was significant relation between patients training needs about psychologic issues and frequency of being hospitalized (p?0.001). Conclusion: The final conclusion shows that some characteristics potentiate training requirements and there must be some more concern about somatic issues training needs.